Internet Resources for Special Children (IRSC)

Welcome to the Internet Resources for Special Children (IRSC) Home Page.

Last modified 01 March 2011
HTML code, logo and document formatting copyright 1996 by Julio G. Ciamarra. Updated by OrsaMinore

Narrative Overview

The IRSC Web Site is an attempt to bring together valuable information for parents, educators, medical professionals, etc. who interact with children who have disABILITIES. I hope that you find the information and resources here to be useful, but I would recommend to verify them first.

Navigation: You Can Click on a Category or Scroll Down

Adaptive Hardware and Software Computer Aids

• Adaptive Computer Systems - provides products to help people with disabilities use computers
• Apple - Accessibility resources
• IBM Special Needs Solutions
• Microsoft Accessibility - Technology for Everyone

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Attention Deficit/Hyperactivity Disorder (ADD & ADHD)

• ADD - the problem with drug treatment
• A.D.D. - Treatment and Research Center
• ADD and ADHD - a new, non-drug, natural approach
• ADD/ADHD - important information regarding side effects of common medications
• ADD/ADHD Europe - links to ADD/ADHD sites and information throughout Europe
• Attention Deficit Disorder - Valentine Brandi Homepage - a page for parents by a parent
• Attention Deficit Disorder Archive
• Children and Adults with Attention Deficit Disorders (CH.A.D.D.)
• Helping Your Difficult Child Behave - a book by Dr. Michael Schwarzchild, Ph.D.
• NACD - your ADD/ADHD child
• news:alt.support.attn-deficit - a newsgroup dedicated to discussions of ADD/ADHD
• One A.D.D. Place - Attention Deficit Disorder
• Transition of Children With ADD into Successful Adults - "what works & what doesn't"
• Wellness Web - the Patient's Network

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Asperger's Syndrome (AS)

• American Hyperlexia Association Home Page
• Asperger's Disorder Home Page - By Kaan R. Ozbayrak, MD
• Asperger's Syndrome Support Network - Victoria, Australia
• O.A.S.I.S - On-Line Asperger's Syndrome Information & Support

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Autism, Fragile X Syndrome & Pervasive Development Disorder (PDD)

• The Autism Channel Link - the virtual newspaper for Autism
• The Autistic Child - facts for families (English, Spanish, French)
• Autism Page - other valuable links
• Autism/PDD Clinic - Yale Child Study Center
• Autism Resources
• Autism Society of America
• Autism Societies in Finland - English & Finnish versions
• Center for Autism and Related Disabilities - suggested reading and reference list
• Center for the Study of Autism (CSA)
• Fragile X Advocate - bimonthly journal
• FRAXA Research Foundation - supporting research aimed at treatment for Fragile X Syndrome
• Kennedy Center - hints and tips articles
• National Autistic Society - (UK)
• news:bit.listserv.autism - a newsgroup dedicated to discussions of Autism
• Saskatoon Society for Autism, Inc.
• Virtual Environments - for students with Autism

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Brain Injury (TBI/ABI)

• Acquired Brain Injury (ABI/TBI) Forum - community of Illinois
• Associazione per il Recupero e la Riabilitazione dei Traumi Cranici - Italian
• bit.listserv.tbi-support - a newsgroup dedicated to discussions of Traumatic Brain Injury
• Brain Injury Association Inc.
• The Brain Injury Association of Connecticut
• John & Clara's TBI/ABI Related Sites
• The NIDRR - Traumatic Brain Injury model system of rehabilitation care
• Rehabilitation - comprehensive inpatient and outpatient rehabilitation services
• TBI Support and Rehabilitation - a magazine and service for, by and about the disABLED
• Traumatic Brain Injury (TBI) - recovery rates in children
• The Traumatic Brain Injury (TBI) Project

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Cerebral Palsy (CP)

• Cerebral Palsy - a complete guide for caregiving
• Cerebral Palsy - a guide for care (Alfred I. duPont Institute)
• Cerebral Palsy Association of British Columbia
• The Cerebral Palsy Big Sibling Program - Boston area children
• Cerebral Palsy - Disability-Specific Web Sites
• Cerebral Palsy Tutorial - from the University of Virginia Children's Medical Center
• Cerebral Palsy Research Foundation of Kansas (CPRF)
• DefNet - first Brazilian page about CP and an on-line database (Portuguese)
• How Can I Help? - information for friends and relatives of a child with Cerebral Palsy
• Human-Machine Interfacing in Rehabilitation Applications
• KidSource OnLine Organizations: NICHCY - general information about Cerebral Palsy
• Medical Sciences Bulletin: MgSO4 in utero may protect against Cerebral Palsy
• news:alt.support.cerebral-palsy - a newsgroup dedicated to discussions of Cerebral Palsy
• St Louis Childrens Hospital - Cerebral Palsy Center
• United Cerebral Palsy Associations (UCPA)
• United Cerebral Palsy of Oklahoma

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Child Amputees

• Amputee Home Page
• Amputees-On-Call
• Information Child Amputee Network (I-CAN)
• National Amputee Fund (NAF)
• Rick and Joni's Amputee Page

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Child Health Care

• Books, Materials & Software for all Aspects of Special Needs - Australia
• Child Care - for children with special needs
• Children's Hospitals and Departments of Pediatrics Around the World
• Children With Special Health Care Needs - Mesa County Colorado
• KidSource OnLine - for children's healthcare information
• The Medicine Program - Medicine at NO COST!
• The National Rehabilitation Information Center (NAIRC)
• news:misc.kids.health - a newsgroup dedicated to discussions of Children's Health

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Cleft-Affected Children

• Caring for Your Newborn with Cleft Lip and/or Cleft Palate
• Cleft Lip and Palate Surgery
• Plastic Surgery FAQs - cleft lip and palate
• Wide Smiles - support and resource page for cleft-affected children

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Developmental Delay

• alt.support.learning-disab - a newsgroup dedicated to discussions of Learning-Disabilities
• The Early Years - a guide to your childs development
• news:alt.support.dev-delays - a newsgroup dedicated to discussions of Developmental Delay

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Down Syndrome

• Down Syn On-Line Magazine - focusing on first-person experiences, opinions, pictures and questions from those who love someone with Down Syndrome
• Down Syndrome Resource
• Down Syndrome WebPage - information from good old Germany
• Down Syndrome WWW Page
• The Family Empowerment Network
• Information Regarding Down Syndrome Children
• Japan Down Syndrome Network (JSDN)
• The National Down Syndrome Society
• news:bit.listserv.down-syn - a newsgroup dedicated to discussions of Down Syndrome
• Supporting Down's Syndrome Children in Mainstream Schools
• UPSIDE! - an informal society for the world of Down Syndrome
• What's Up With Down's? - dedicated to Down Syndrome awareness

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Financial Planning, Laws, Rights

• Americans with Disabilities Act - ADA publications index
• Americans with Disabilities Act - ADA reference library
• Association for Special Kids (ASK)
• Communicating the Americans with Disabilities Act
• Cornucopia of Disability Information - (Gopher site)
• EDLAW, Inc. - basic legal information for the education of students with disabilities
• Individuals with Disabilities Education Act (IDEA) Amendments of 1995
• Laws Affecting Children with Special Needs
• Law and Disability - the Easter Seal Society
• Planning Estate for Children with Special Needs

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General disABILITY Links...

• Catalogue for Children with Special Needs
• Disability Advocacy Work With Networking (DAWWN)
• Disability Information and Resources
• Disability Resources on the Internet
• Disability Travel Services
• Disabled Peoples' International (DPI)
• The Easter Seals Gateway - a Service of the National Easter Seal Society, USA
• Family Village - a global community of disability-related resources
• Metropolitan Society For Crippled Children and Adults
• Points of Pediatric Interest
• Special Children/Special Solutions
• Yahoo - Society and Culture: Disabilities

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Hydrocephalus

• Hydrocephalus Association
• Hydrocephalus and Its Treatment
• Pediatric Neurosurgery Home Page at Columbia-Presbyterian Medical Center, New York

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Mental Retardation

• The Arc - a national organization on Mental Retardation
• American Association on Mental Retardation (AAMR)
• Children Who are Mentally Retarded
• Ethics and Intellectual Disability
• President's Committee on Mental Retardation (PCMR)

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Muscular Dystrophy & Spinal Muscular Atrophy (SMA)

• Families of Spinal Muscular Atrophy (SMA)
• Muscular Dystrophy Ireland (MDI)
• Muscular Dystrophy Association of Australia
• Muscular Dystrophy Association of Canada
• news:alt.support.musc-dystrophy - a newsgroup dedicated to discussions of Muscular Dystrophy
• Spinal Muscular Atrophy - learn more about it

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Parenting/Support Resources

• Ability OnLine
• The Capper Foundation - service primarily for children to achieve independent life skills
• CFSP - Child and Family Studies Program
• Fathering Special Needs Children
• Parents Helping Parents
• Parenting Resource Center
• Parenting Resources for Child Health
• Parent Support Directory for California area
• The Son-Rise Program. - for families with special needs children

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Rare Diseases/Disorders/Conditions

• Moebius Syndrome Foundation - craniofacial condition and a rare neurological disorder
• The Myelin Messenger - quarterly newsletter
• The Myelin Project - aims to accelerate research on Myelin repair
• National Organization for Rare Disorders (NORD)
• Rare Genetic Diseases In Children
• Unknown and Rare Diseases/Disorders
• X-Linked Myotubular Myopathy Resource Group

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Rett Syndrome

• International Rett Syndrome Association (IRSA)
• The Reality of Rett Syndrome
• Rett Syndrome Page Index
• Rett Syndrome Resources

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Seizure Disorders

• Advanced Study of Epilepsy - Duke University Medical Center
• AECOM/MMC - Epilepsy Home Page
• Comprehensive Epilepsy Center of New York Hospital - Cornell Medical Center
• Comprehensive Epilepsy Program - Washington University
• EFA - Epilepsy Foundation of America
• Epilepsy Resources - a plethora of information on Epilepsy
• EpiNet - Epilepsy Foundation of Victoria
• news:alt.support.epilepsy - a newsgroup dedicated to discussions of Epilepsy
• Pediatric Epilepsy Patients Benefiting from Ketogenic Diet
• Seizures and Epilepsy - Frequently Asked Questions
• Surgery for Epilepsy

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Special Education

• DREAMMS for Kids, Inc. - educational technologies for kids with special needs
• Internet Resources for Special Educators
• news:alt.education.disabled - a newsgroup dedicated to discussions of Education/disABLED
• School Bus Tranportation of Children with Special Needs
• SERI - Special Education Resources on the Internet
• Special Needs Education Network (SNE)
• Yahoo - Education: Special Education

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Tourette Syndrome

• DSM-III-R - definition of Tourette Syndrome from the diagnostic and statistical manual
• Guide to the Diagnosis and Treatment of Tourette Syndrome
• National Tourette Syndrome Association, Inc.
• news:alt.support.tourette - a newsgroup dedicated to discussions of Tourette Syndrome
• Tourette Syndrome - an explanation of Tourette Syndrome
• Tourette Syndrome Association - Australia
• Tourette Syndrome Association - Massachusetts Chapter
• Tourette Syndrome Association - Oklahoma Chapter
• Tourette Syndrome Association - Southern California Chapter
• Tourette Syndrome Association - The Virtual Hospital
• Tourette Syndrome Information Site - located in Nova Scotia

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Visual & Hearing Impairment

• The American Foundation for the Blind
• Blind Childrens Center, Inc.
• Blind Related Links
• Blind and Visually Impaired Resources - Luxembourg (HANDITEL site) directory of global resources
• Children's Vision Concerns - books about children and visual impairment
• Deaf World Web - a central Deaf point on the Internet
• National Eye Institute (NEI)
• The National Federation of the Blind (NFB)
• The National Information Clearinghouse On Children Who Are Deaf-Blind
• National Institute on Deafness and Other Communication Disorders (NIDCD)
• NCIP Resources - technology for students who are visually impaired
• news:alt.support.hearing-loss - a newsgroup dedicated to discussions of Hearing-loss
• news:bit.listserv.blindnws - a newsgroup dedicated to discussions of Blindness
• news:sci.med.vision - a newsgroup dedicated to discussions of Vision
• Project HIIT - Internet for the hearing impaired

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